Category Archives: Palliat Med

Psychological morbidity and general health among family caregivers during end-of-life cancer care: A retrospective census survey.

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Psychological morbidity and general health among family caregivers during end-of-life cancer care: A retrospective census survey.

Palliat Med. 2018 Aug 21;:269216318793286

Authors: Grande G, Rowland C, van den Berg B, Hanratty B

Abstract
BACKGROUND: Family carers provide vital support for patients towards end-of-life, but caregiving has considerable impact on carers’ own health. The scale of this problem is unknown, as previous research has involved unrepresentative samples or failed to fully capture caregiving close to death.
AIM: To quantify level of psychological morbidity and general health among a census sample of carers of people with cancer at end-of-life, compared to population reference data.
DESIGN: National 4-month post-bereavement postal census survey of family carers of people who died from cancer, retrospectively measuring carers’ psychological health (General Health Questionnaire-12) and general health (EuroQoL EQ-Visual Analogue Scale) during the patient’s last 3 months of life.
PARTICIPANTS: N = 1504 (28.5%) of all 5271 people who registered the death of a relative from cancer in England during 2 weeks in 2015 compared with data from the Health Survey for England 2014 ( N = 6477-6790).
RESULTS: Psychological morbidity at clinically significant levels (General Health Questionnaire-12 ⩾4) was substantially higher among carers than the general population (83% vs 15%), with prevalence five to seven times higher across all age groups. Overall, carers’ general health scores were lower than population scores, median 75 (interquartile range, 50-80) versus 80 (interquartile range, 70-90), but differences were more marked at younger ages. Female carers had worse psychological morbidity and general health than male carers.
CONCLUSION: Levels of psychological morbidity among family carers during end-of-life caregiving are far higher than indicated by previous research, indicating a substantial public health problem. Consistent assessment and support for carers to prevent breakdown in caregiving may produce cost savings in long term.

PMID: 30130458 [PubMed – as supplied by publisher]

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End-of-life care during and after an acute hospitalization in older patients with cancer, end-stage organ failure, or frailty: A sub-analysis of a prospective cohort study.

End-of-life care during and after an acute hospitalization in older patients with cancer, end-stage organ failure, or frailty: A sub-analysis of a prospective cohort study.

Palliat Med. 2015 Sep 16;

Authors: Huijberts S, Buurman BM, de Rooij SE

Abstract
BACKGROUND: Many patients show deterioration in functioning and increased care needs in the last year of life. End-of-life care needs and health care utilization might differ between groups of acutely hospitalized older patients.
AIM: To investigate differences in geriatric conditions, advance care planning, and health care utilization in patients with cancer, organ failure, or frailty, who died within 1 year after acute hospitalization.
DESIGN: Prospective cohort study conducted between 2002 and 2008, with 1-year follow-up.
SETTING: University teaching hospital in the Netherlands.
PARTICIPANTS: Aged ⩾65 years, acutely hospitalized for ⩾48 h, and died within 1 year after hospitalization. At admission, all patients received a systematic comprehensive geriatric assessment. Hospital records were searched for advance care planning information and health care utilization. Differences between patient groups were calculated.
RESULTS: In total, 306 patients died within 1 year after acute admission (35%) and were included; 151 with cancer, 98 with end-stage organ failure, and 57 frail older persons. At hospital admission, 72% of the frail group had delirium and/or severe pre-existing cognitive impairment. The frail and organ failure group had many pre-existing disabilities. Three months post-discharge, 75% of the frail and organ failure group had died, 45% of these patients had an advance care plan in their hospital records.
CONCLUSION: Patients with frailty and organ failure had highest rates of geriatric conditions at hospital admission and often had missing information on advance care planning in the hospital records. There is a need to better identify end-of-life needs for these groups.

PMID: 26376937 [PubMed – as supplied by publisher]

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Caregiving and bereavement research: Bridges over the gap.

Caregiving and bereavement research: Bridges over the gap.
Palliat Med. 2015 Jul;29(7):574-6
Authors: Stroebe M, Boerner K
PMID: 26048707 [PubMed – in process]

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Physician-assisted death is less frequently performed among women with a lower education: A survey among general practitioners.

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Physician-assisted death is less frequently performed among women with a lower education: A survey among general practitioners.

Palliat Med. 2014…

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Out-of-hours medical care for terminally ill patients: A survey of availability and preferences of general practitioners.

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Out-of-hours medical care for terminally ill patients: A survey of availability and preferences of general practitioners.

Palliat Med. 2012 Dec;26(8):986-93

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